Baylee update

Sorry for all of you who check my blog for entertainment value, hopefully soon we can be back to our fun regular posts for now its all about the updates to the friends and family who are praying for my niece!


After a rough night last night, Baylee is doing better today. She is currently sleeping in my mothers arms while my Brother and SIL are doing a little bit of Christmas shopping. They will be spending Christmas in the hospital and don’t feel like the next few days will permit them to leave.

Baylee developed a fever last night and the concern was they can’t perform the surgery if she is sick. Her fever has gone down today so they are still on course for surgery tomorrow to remove the tumor and get a sample of some bone marrow to test to see if the cancer has spread to her bones. She will also go in for an MRI tomorrow morning at 9 a.m. This will give the Doctors one last look beforehand to check for anything else and orient themselves better on the location of her nerves etc.

They stopped giving her a certain medication to help with her OMS because it wasn’t helping and in fact it was just making her SICK. She was able to go on a ride through the hospital on a wagon and she LOVED it. She was also able to see Laycee for about 20 minutes yesterday and she was laughing and smiling the whole time. She really misses her baby sister. My mom and dad watch her when they are home. But while they are gone at the hospital, Matt and I watch her. I must say I am getting pretty good at a baby on each hip!

Tomorrow the surgery will hopefully be at Noon. Take a second to think and say a little pray for her around then. Things are looking good as far as removing the tumor and deciding which type of chemo to give her. Before the thought was that some of the tumor may not be able to be removed because it was in her spine, but the surgeon had been looking at her most recent full body CAT scan for some time in he is confident that he can remove it all. We are REALLY hoping that the tumor isn't an aggressive type of cancer and that it HASN'T spread so it can be a really really mild form of Chemo they treat her with. After that is taken care of they can resume finding a good treatment for her OMS.

My aunt had a good thought and I am hoping some one can help us out with this. H and Brit have to go up stairs and use Primary Children’s public computers to post any sort of updates and check e-mail, they have time restrictions and no privacy. Is there anyone who has a laptop lying around that would so kind as to let them BORROW it for a week or so? It would be so nice if H and Brit could be able to stay in the room with Baylee and stay connected with the family on the internet. Please let myself or my mother know if that is a possibility. It would be GREATLY appreciated.

Thanks again for all the prayers, I feel like at this point we should see her health start to improve and hopefully tomorrow is a good day for her!